If you know me in real life and have found this blog, please honour my wishes and don't read on. I need this place to freely write my feelings to help me to heal and if you're reading, I'll censor myself. I have no way of knowing who is reading so all I can do is trust you to honour my wishes. Thank you.

(this doesn't apply to any of my fellow mums of angels I've been lucky enough to meet in real life)

Monday, February 7, 2011

A Different Life

I've been meaning to tidy up our bookcase for ages but I didn't realise just how long. I started today and I obviously haven't been through it since I had Matilda. It's made me realise just how stressed I must have been during my whole pregnancy because I spent pretty much all my time at home and I still didn't get around to it.

I found some photos from my SIL's wedding when I was 26 weeks pregnant - after the awful 20 week scan and following days but before the BWS diagnosis. There's a photo of me sitting on the couch after having my hair and make-up done but before I'm dressed. I'm smiling and cradling my stomach as pregnant women do. I look at these photos and think 'Matilda was alive and kicking in there'. It seems like a different life.
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We've just been on our first holiday to NZ with Max and it was wonderful. For the most part my life looks like any other Mum's with a four month old. But most days there's a quiet moment where I wonder what life would be like with a 15 month old girl and cry. Then I wipe my tears away and go back to the wonderfulness that is everyday life now. I guess that's just how it is now and always will be.
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Sometime during my pregnancy I started following a blog that wasn't a babyloss blog. Last week Grace arrived far too early at 22 weeks. If you've got a moment, please send Katie some love.

Wednesday, December 15, 2010

The Old Me vs The New Me

There's a post over at Glow about how we've changed since losing our precious babies and have parts of the 'old me' come back.

The old me was extremely extroverted and normally I was the loud one in a group of people. I loved meeting new people and I wondered about what having a baby would do to my identity.

After Matilda died I didn't want to see anyone for a long long time. And once I could no longer hide my pregnancy with Max I didn't want to see people either. It was something my husband worried about because it was such a huge departure from the person I used to be. But now I can feel that part of me coming back. The night before last the neighbours invited us over for a barbie with their brother, wife, and kids that were staying. It was spur of the moment and I was about to say no but thank for asking as I've been doing for the last 18 months when I realised I didn't really have a reason to say no and it sounded like fun. And it was. So it was nice to feel that part of me returning. But there's still something that's been taken away, some confidence that's missing. Before if I emailed people and they didn't respond I never really thought about it but now I always find myself thinking 'was it something I said'. The same in a group if I say something and it all goes silent or there's a pause before asking. I guess it's that I often feel socially awkard in a way I never used too.

I find meeting new people far harder than I used too. There's always the decision about whether I want to talk about Matilda with them. And then if I don't and the conversation swings in a certain way it becomes difficult or just plain painful. Like when people start talking about their 'awful pregnancy' because they had morning sickness and were uncomfortable at the end. In my books, if that's all you've got to complain about and you are complaining, then you've really got no idea. Or I do mention Matilda and they don't even acknowledge it.

As for wondering about what a baby would do to my identity. I've spent the last 18 months hoping for a baby to define my identity so that's not something I worry about anymore. Maybe I will in time but right now, I'm just so happy I have be defined as a Mum by other people and spend my days at home marvelling at Max alive and growing.

I'm more emphathetic and also more selfish. This seems to be pretty common among us BLMs.

I'm crying more lately than I have in a while. I'm not sure why. If it's approaching our second Christmas without Matilda. If spending time around families means I see girls about Matilda's age more often and I look at them and wonder what she would've looked like now. If it's every time Max does something new it's a reminder that I'll never see Matilda do those things. If it's that her birthday was not as hard as I expected due to being so caught up in caring for a newborn that it's catching up with me now. If it's because now Max is here everyone thinks I'm fine again - I'm sure even my closest friends would be shocked to find out that I still cry most days.

But despite all that life is good. The sun is shining. My Mum was here week before last and we've booked flights to see them at the end of January. We have a Christmas Tree with presents underneath it in the corner. Max is asleep in his cot and this afternoon we're going to Mother's Group this afternoon. It's just that someone will always be missing and missed.

Sunday, December 12, 2010

Forever

When Max was born my MIL gave us a gown she wanted us to take a photo of him wearing. She didn't say much about it other than DH and his sister had both had photos in it. We took the photos last week and I got DH to ask her what the history of it was. Her MIL had made her 3 gowns for Michelle - her first child who died a few hours after she was born.

I remember the first time she told me about Michelle - it was before we got married and had even thought about kids. She explained with tears in her eyes about going through labour and then Michelle being taken away and no one telling them what was going on. She doesn't talk about it a lot but has more since Matilda died. Michelle was taken away straight after the birth and she never got to see or hold her - she knows she had dark hair from the glimpse she got but that's all. She has said to me she thinks I have it much harder than her because Matilda lived for four days and I got to hold her but I'm not sure that's really the case.

I never knew she'd kept anything she had for Michelle but obviously she's kept this all these years (Michelle would have been 32 in May).

I know I'll love and miss Matilda forever but thinking about that is hard. So I try to take it a day at a time. Now Max is here I'm sure everyone thinks we happy and everything is fine now. I'm sure they don't think about the fact that every single time someone asks me 'Is he your first?' my heart catches and I have two seconds to decide if the person asking is someone I want to tell about Matilda. I'm sure they don't think about every time someone says 'When you have your second' that my head screams 'I already have two babies!'. That when they start talking about how they think a small gap between siblings is best that I feel exhausted and terrified by the prospect of trying to get through another pregnancy. And I know they don't think about the fact that 32 years from now I'll be thinking about Matilda and wondering what sort of women she would have grown into and how my heart breaks that I'll never know.

Saturday, December 4, 2010

Remembering Matilda

We were over at the neighbours having a Christmas drink today and their two boys (just turned 5 & 3) were playing with Max on the floor. They're pretty fascinated with him and watched closely while I breastfed him and helped DH change a nappy - it's very cute. When they were playing with them on the floor the older one said 'you had another baby before' and I said 'yes'. He then said 'but she died straight away didn't she' and I again said 'yes'. He asked why and I said she was very sick. It's weird - I assumed he would forget all about Matilda but out of everyone other than my immediate family and a few very close friends, he's the only one that mentioned her after the first few months.

The lead up to Christmas this year is hugely different to last year when the shock was wearing off and I was left with the huge weight of grief losing a baby brings. I'm looking forward to it rather than just wishing the days away and I'm so very grateful this is the case.

Got to see Max roll over for the first time today and he's 'talking' more and more. The boys next door asked me what he was saying but I'm still not quite sure ;-)

Hoping the days are gentle for those of you approaching your first Christmas without your precious babies.

Wednesday, December 1, 2010

The most surprising thing about motherhood

At today's ABA (breasting association) meeting the icebreaker question was 'what have you found the most surprising thing about motherhood?' In my head I thought 'That Max is alive, breathing, crying, feeding, growing' but I didn't say that - it's not something that they would have understood. So I went with 'that babies can be so exhausted and still not go to sleep' which has been surprising. It's times like that I just feel different to all the other new Mums. But there were other Mums there with babies similar ages and it was lovely to talk about all the normal things - how much they were sleeping, feeding, and day sleeps not really going well.

Tuesday, November 30, 2010

In a parallel universe

I read a book once (no idea which book) that talked about a theory of infinite universes. For every universe you brushed your teeth in this morning there was another one you didn't. For every universe you decided on the white top there was another one you decided on the black one.

So maybe there's a universe out there where the genetic screw up that caused Matilda to have BWS didn't happen. In that universe she would have been born about the 11th of December, and we would've wondered throughout the pregnancy if she'd be late and I'd still be in hospital for Christmas (there's Christmas and Boxing Day babies in my family). And we'd be planning a first birthday party full of pink things. It's hard to believe now.
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Max is growing and growing. 6.4kg last week at 9 weeks old. He's starting to smile and coo. And in the night as he feeds I marvel over the miracle that gets babies here alive and lets them grow.

Tuesday, November 23, 2010

Ouch

I was sending a link to someone today about BWS and I'm not sure why but I clicked through to the prognosis section and for the first time in months read the following:

In general, the prognosis is very good. Children with BWS usually do very well and grow up to become the heights expected based on their parents heights. While children with BWS are at increased risk of childhood cancer, most children with BWS do not develop cancer and the vast majority of children who do develop cancer can be treated successfully.

I try not to spend time thinking about the 'why us' aspect because it's painful and in the end, doesn't change things. But on re-reading this, it's hard not think about the fact that most other people who go through finding out their child has BWS, the complicated pregnancy, and the NICU time get to take their children home and watch them grow up
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On a different topic, I posted in the Glow forum about finding it difficult to relate to the other Mum's at mothers group. I desperately want to make friends with other Mums but I can't help feeling like the odd one out. And I'm scared - tomorrow we're talking about 'Adpatation to Parenthood'. I'm scared it's just going to be everyone talking (complaining) about the hard parts of parenting. I know parenting isn't all easy and I also don't think women pretending everything is wonderful when it isn't helps either. But I can only cope with so much of it from people who don't really understand just how lucky they were to fall pregnant, have uncomplicated pregnancies, and bring their babies home. So I guess we'll see how we go.
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Max is growing, still wonderful, still beautiful, and everything else. And I still miss Matilda everyday.